Maybe a naive question, but Is there a service like 23 and me but that doesn’t collect/keep my genetic information ? @nostupidquestions@lemmy.world
Maybe a naive question, but Is there a service like 23 and me but that doesn’t collect/keep my genetic information ? @nostupidquestions@lemmy.world
The problem is that to be able to tell you anything about relationships or heritage, they need a certain database, and the quality of that depends on the amount of entries to compare.
Without adding your data set to the collection, they would not gain anything to improve their database, which would de-value it in the long run.
A service that would analyse but not retain your data would have to pay other companies to provide input, and would therefore much more expensive.
@Treczoks@lemmy.world That’s fine, but I’m more interested in the genertic markers that can be associated to diseases more than finding my ancestry tbh
Still, those reasons apply. If you want such a service, expect to pay way more than usual. I do expect that some companies offer such a service for VIPs and Celebrities who don’t want to pop up in other peoples listings, but they probably pay for it through the nose.
Are you sure you cannot simply opt out while registering the sample? I live in Germany and I can only use these kinds of analyses for ethnicity/heritage analysis since genetic testing of risk factors as therelike are forbidden here. But I remember myheritage (which I used) asked me a lot of questions on how much data I want to share, what I want to share anonymously, what I want to share for research or keep in the database or sample storage for future analyses. I was also able to absolutely delete all data - account, sample destruction, genetic data - from every database. Comes with the obvious caveat that you cannot access any data from your initial analysis anymore but in my situation that was an ok trade off.
@volvoxvsmarla@lemm.ee I don’t know tbh, but in general I am hesitant of trusting that type of data to a company. While HIPAA laws are pretty strong, I’m not sure how they are enforced in this case