Hey y’all. I posted a few weeks ago about being discouraged after a recent colonoscopy that showed despite being on oral and suppository mesalamine that I was still showing ulcers in my colon (proctitis). However, at the time of the colonoscopy, the UC hadn’t spread anywhere. So that’s good news!

One thing I did is stopped taking my SSRIs and went through about 3 weeks of withdrawal. This was a planned thing, I know stopping an SSRI can be risky but I was getting withdrawal symptoms after just 12 hours or a missed dose and I didn’t need them anymore for anxiety/depression.

I had also started the Evinature CurQD supplement and my UC symptoms are pretty much all gone. No blood, no mucus, no liquid bowel movements.

But right after I was done withdrawing from the SSRI, this would be three weeks post-colonoscopy, a little more than 3 weeks since starting the CurQD, I thought things might start evening out. There were some rough GI issues withdrawing from the SSRIs but they were short lived and I knew that would happen.

But things didn’t even out.

Instead, I started getting bloated and having a lot of abdominal cramping. The pain was pretty severe, so much so I really considered going to the hospital. My GI PA ordered a CT and I did that. All they found was a slight thickening of the colon wall in the sigmoid, descending, and transverse colon.

So my question now is: I think the UC is under control using the CurQD protocol. But is healing also painful? Like how do the ulcers heal? Do they scab? Is the pain here just part of the healing process? I’d find it hard to believe that within 3 weeks of the colonoscopy that the UC somehow spread so far up my colon almost instantly.

The GI PA also described Bentyl. He thinks I have both UC and IBS-D. So I just started taking that a couple days ago.

I’m just on so many meds now I’m having a hard time keeping track of what is a symptom of the disease and what’s a side effect.

Curious y’all’s experience getting out of a flare and into remission.

  • DontTreadOnBigfoot@lemmy.world
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    5 months ago

    I had very severe pancolitis, diagnosed as Crohn’s. 99+% of the large intestine and some in the small, so I had a LOT of ulcers. I am now in full remission on infliximab.

    And no, there was no pain associated with the healing. The only sign of the physical healing was that I stopped having blood and mucus, and my blood counts slowly started improving.

    • c0smon4utOP
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      5 months ago

      Thanks for your reply! I appreciate hearing your story and insight.