The GP let me have a blood test 2 weeks ago and I hit 8.4g/L of haemoglobin (down from 31g/L) instead of the normal healthy 130g/L, despite eating an unholy amount of iron rich veggies and some horrid ferrous fumarate(iron) tablets. He said it needed to go lower for me to qualify for iron transfusion! WTF

I then badgered the hospital where I was diagnosed Celiac 3 months ago to give me a meeting with specialist. Yesterday I got that face to face meeting, saw a picture of my tortured small bowel from endoscopy (wow!) and he said we need to give you iron intravenous infusion asap and you will feel much better.

Today I got the infusion. Still feel like crap but it’s nice to know there’s actual iron in my body and it will do me good soon. 2nd dose next week. Even if it takes weeks I know I can feel good soon.

I also looked back on a lot of life events and moments where I was sick and it was Celiac but looked like something else. Dry mouth, depression, yellow and pale skin, weird nails, sore teeth, late puberty, not gaining weight… ever. Ah well. Many different problems should get better soon.

  • slinkyninja@lemmy.world
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    1 year ago

    Story of my life. I spent years going to doctors and nothing happened. Took me a long time to figure it out myself.

    I’m glad you’re doing better. Life is a strange unusual roller coaster.

    The putting-on-weight thing was weird for me. I never had any muscle my whole life. People just told me I was lazy. Been learning how to pack it on now and starting to see changes in my life because of it.

    • craftyindividualOPM
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      1 year ago

      Good that you can gain muscle later on - hoping for this. Did you have Celiac or just anemia? It’s been 2 days and I still feel and if not worse, as much as I hate needles I feel like several more infusions could do the job.

      Been so long since I had iron I think the body can’t remember what to do with it, yet xD

      Also getting a bone scan to make sure they aren’t crumbley or something.