I got a COVID infection a while ago that permanently disabled me pretty bad. Bedridden, unable to move much, etc.

The thing that really helped me was relaxing and listening to music. That’s what I spent my days doing as I couldn’t do much else. I became a real music nerd and just loved the bliss of hearing music.

A little later (two years). I got another COVID infection — I was taking very strong precautions, and couldn’t see anyone. It turns out I got it from my doctor. Anyways, this infection caused some brain damage which has caused me to mostly loose the ability to hear. And now I’m still mostly motionless alone in bed, but I haven’t even got the comfort of sound or music. Just a mostly silent (tinnitus filled) world.

I’m so scared of getting covid again. But mostly I miss the world and my old life. Being stuck alone in bed with only the internet for company sucks. People tend to be arseholes online. I can’t help but feel I got “natural selectioned”. Me and my wife were planning on having kids soon. Now I barely see her and I’m going to slowly die in a nursing home. There are specific genetic vulnerabilities to illnesses, and natural selection works with them (see what Europeans coming to America did). And I got fucked here. COVID was my end.

  • inb4_FoundTheVegan@lemmy.worldEnglish
    252·
    2 months ago

    This is 100% inappropriate to ask. While I am also very pro-vaccine and frustrated at the anti-vaccine movement, you’re talking to some who is grieving the loss of a major part of their life. Saying all this is on par with “Did your mom X with you” or “This wouldn’t have happened if you didn’t Y so much” to explain disabilities. No one owes you their medical history and shame on you for asking. You’re fishing to put personal blame on to someone so you can get a sense of smug schadenfreude from another suffering. Let’s say the answer is yes, are you truly here to do a victory lap?

    • kitnaht@lemmy.worldEnglish
      424·
      2 months ago

      Let’s say the answer is yes, are you truly here to do a victory lap?

      Yep. And if the answer is no, then I’ll offer my condolences and probably do some research to see what opportunities for treatment they have available - so that I can help in the way I know best.

      • inb4_FoundTheVegan@lemmy.worldEnglish
        24·
        2 months ago

        Yep.

        Well that is just an outright cruelty. Fucking stop.

        And if the answer is no, then I’ll offer my condolences

        Do that anyways.

        probably do some research to see what opportunities for treatment they have available

        Holy shit don’t. This post isn’t your personal call to action. OP’s doctors know far more about their treatment than some rando online. OP is venting, not asking for your personal medical advice.

        Please, try to understand what you are doing here is harmful, not help and learn how the disabled community is begging people to stop saying these things.

      • TimewornTravelerEnglish
        61·
        2 months ago

        what a smug piece of shit. not just because you want to gloat at another’s suffering, but because you are fucking arrogant enough to this that you can help find a solution to a problem OP has had for years.

        Do you really think that OP is that much of an idiot that it took them two years to find some random asshole on lemmy to Google shit for them?

        You need to do some introspection, holy shit

        • kitnaht@lemmy.worldEnglish
          24·
          2 months ago

          I have helped find solutions for a handful of people’s medical issues over the years.

          I’ve found doctors often don’t care to do this research themselves. You too can help; as someone who cares about this stuff often times a patient’s best hope is usually a family-member who is diligent in asking questions and educating themselves further.

          So piss off, internet armchair expert. Doctors aren’t infallable as you may think; and I’ve known plenty to simply don’t give 2 shits and do not look further into stuff such as this.

          • inb4_FoundTheVegan@lemmy.worldEnglish
            23·
            2 months ago

            Doctors aren’t infallable as you may think;

            The irony of raging about anti vaxxers while using their talking points.

            • kitnaht@lemmy.worldEnglish
              12·
              2 months ago

              Anti-vaxxers don’t trust scientific researchers and their research.

              I don’t trust for-profit “doctors”, who look at you as a pile of cash to extract money from.

              While related to the healthcare industry, they are not one in the same. MRNA vaccines are a technology that has been studied and perfected for a very long time.

              Doctors on the other hand, will treat you up until the point where they don’t believe they can extract money from you any longer. But there are still studies on Long-Covid that help advance that research and may even help reduce/eliminate some of the symptoms of its effects. Many of these studies are looking for participants, and don’t exist to extract money from the people joining them; in fact, many will pay participants. They’re risky, but in this particular instance, that may outweigh the problems that are being experienced.